Blog - Musculoskeletal Health Australia (MHA)

14/Aug/2018

There’s so much information available on treatment options for arthritis and musculoskeletal conditions. Some information will support the use of particular treatments, while other information will tell you the treatment doesn’t work. And most of the information sounds legitimate and persuasive.

So how do you know what to do or who to believe?

One thing you can do is search the Cochrane Library for reliable and evidence-based information.

The Cochrane Library is a collection of medical and health databases provided by the Cochrane Collaboration, an international, independent organisation. It was established to make sure that everyone has access to current, accurate information about the effectiveness of healthcare treatments.

Through the Cochrane Library you can access Cochrane Reviews.

Cochrane Reviews tell you how effective healthcare interventions are in improving your health or helping you with a particular health problem. These interventions include things such as medications, vaccinations, exercises and treatments such as physiotherapy.

Cochrane Reviews are updated regularly, with the most up-to-date and reliable evidence.

Each review starts with a query, for example:

Do painkillers rubbed on the skin really work??
Does transcutaneous electrical nerve stimulation (TENS) relieve pain in adults with fibromyalgia?
What non‐drug interventions may help people with inflammatory arthritis stay at work?

Reviewers then collect, evaluate and summarise the available evidence on this topic.

Plain language information at your fingertips

Reviews can be many pages long, and quite complex. To help you access this information, each review has a plain language summary. You can usually find this at the top of the page, after the abstract.

Access the Cochrane Library today.

Want to get involved?

If this sort of thing really floats your boat, check out the Cochrane Consumer Network. There are many ways that consumers can get involved.

Musculoskeletal Health Australia

02/Aug/2018

Written by Thalia Salt

My name’s Thalia and I’m twelve years old. I was diagnosed with osteoarthritis when I was five years old, which was caused by a joint infection in my left hip when I was ten months old. I like to sing and act, and I love hanging out with my friends after school.

Living with arthritis from such a young age is hard, but it has some advantages. I’ve been finding different ways to cope for my whole life, which means I have some quite effective strategies up my sleeve. But there are many things that aren’t so great. I learned to walk with arthritis, so my gait was awkward. I don’t know what it’s like to have no pain, and sometimes when I do have lots of pain my body tunes out of it until it’s unbearable.

The arthritis has also gotten in the way of my life outside of school activities. I have to sit down when I sing, and I’ve had to do several performances in my wheelchair. When I’m with my friends, we have to limit our activity accordingly. I haven’t been able to participate fully at school and have had to resort to a mobilised scooter in the past just to get around.

This story has a happy ending though. In June 2017, I had a total hip replacement. Since then, I‘ve been walking up to 3km, running, getting around school without my walking aids. I’ve also been swimming and riding my bicycle.

Something else that’s changed is the amount of medication I’m taking. Before, I was taking a large range of medications, including some very strong painkillers. Now I take hardly any medication. My personal lifestyle has also been greatly altered. I’ve been able to move around the house freely, participate in my outside of school activities like any other person, although I’m still not up to standing up for more than a few minutes. I’ve been discharged from the physiotherapist and have started to see a personal trainer.

In the future, I should be able to participate in P.E. at school, stand up for as long as I like, walk around my neighbourhood with my friends after school. I should have no pain, which is something that I’ve not experienced before. I can’t wait to go to the beach without my crutches and being able to do whatever I want when I get there, without worrying about the consequences.

My top 5 pain management tips

Heat packs. Something that affected me a lot was the cold in the dead of winter. A heat pack when relaxing can often ease the pain, particularly when I go to sleep.
Crutches. These help take the stress off your joints. Obviously this only works for pain in your legs.
Reducing movement before a large amount of exercise. If I know that I’m going to participate in an activity that requires a lot of physical movement, I’ll take it easy for a few days, as if I’m “saving” the soreness for later.
Not constantly being on all the meds. That way, when you’re in a lot of pain you have something you can take.
Stretch constantly. I know that maintaining the right amount of exercising and protecting your joint is hard, but a large cause of pain is stiffness from not moving enough. So, you need to stretch. A lot.

Our guest blogger

Thalia is a positive ambassador for young people living with arthritis and chronic pain.

She’s worked tirelessly to raise the profile of arthritis in young people and how it affects them. She’s held fundraising events, received many awards, created a Facebook page, a vlog on YouTube about her surgery and much more.

Lisa Bywaters

02/Aug/2018

Gathering your all-star support team

Written by Amanda Sobey

Attempting to take control of your chronic condition can at times be a daunting and uncertain challenge. Ensuring you have a strong team around you to help tackle each milestone, step by step, can make it feel achievable.

So who might be in your personal support team?

Health professionals

Depending on your individual needs, your team may be made up of a variety of health professionals. These could include your GP, rheumatology nurse, specialist, pharmacist, physiotherapist, rehabilitation practitioner, occupational therapist, nutritionist or dietitian, physiotherapist, remedial massage therapist, acupuncturist, health coach, counsellor, podiatrist, or your exercise physiologist. Share your goals with your health practitioner up front to maximise the limited time in your appointments and so they can help you progress.

Your personal cheer squad

Surrounding yourself with people who lift you up and encourage you to take charge of your condition can be empowering.

Family and friends

Let them know how they can help you and keep them in the loop as you go along. Let them celebrate the small wins with you. Examples could be receiving positive results of reduced inflammation from your latest blood test, that you managed to walk around the block comfortably, or that you had a pain-free night’s sleep. They might be able to help you hang out that load of washing or put a home cooked meal in your fridge. They can provide a second pair of ears when you need to off-load, question information you’ve been given or accompany you to your next medical appointment. They can also be great companions for a belly laugh, keeping active and getting out of the house!

Peer support group contacts

Being able to connect with people who are going through the same challenges can mean the world. This might be through online social networks or contacts you’ve made at meetups. Group members will be at various stages of their conditions. Some will be newly diagnosed, others may be long-time chronic illness warriors. They’ll be happy to share their experiences and provide insight based on what has helped them.

Studying?

Consider letting your teacher or course convenor know about your condition, so that they can provide assistance if you need to ask for an extension, or are unable to attend a class. It’s also worth finding out about other support services available at the school or university you are studying with.

In the workplace

If you feel comfortable, let your employer or HR Manager know about your condition so that they can provide flexibility, if and when you need it. They’ll be appreciative of any information you can share with them about your condition, so they know how best to help.

On the road to wellness

With the right support around you, taking control of your chronic condition can feel even more possible. Keep your care team in the loop, share your highs and lows and be sure to celebrate each milestone on your wellness journey.

Our guest blogger

Amanda Sobey is a co-founder of Young Adults with Arthritis+ (YAWA+), an online peer support network for young adults in Australia aged 18-35 with arthritis and related chronic conditions. Amanda was diagnosed with rheumatoid arthritis at age 22 and is passionate about raising awareness and helping others on their wellness journey.

For more information please visit the following links:

Facebook: www.facebook.com/yawaplus
Twitter: www.twitter.com/yawaplus
Instagram: www.instagram.com/youngadultswitharthritisplus

Lisa Bywaters

27/May/2018

Support is available from people just like you

There’s nothing like talking to someone who knows what it’s like to live with your health condition.

They struggle with the same things you do. They’ve gone through similar experiences, upheavals and successes. They’ve felt similar emotions and thought similar thoughts.

They really understand, in a way that’s almost impossible for people who aren’t in the same boat to understand.

This is peer support. And it can be so helpful and valuable.

Meeting with others like yourself, you can share information, provide support, get advice, and know that you’re not alone.

Support groups can be found all over the place. Some meet face-to-face, while others connect via social media and websites.

We can help you find one near you.

‘I could walk a mile in your shoes, but I already know they’re just as uncomfortable as mine. Let’s walk next to each other instead…’ – Lynda Meyers

Lisa Bywaters

27/May/2018

A book by people like you

Chronic pain is a common and complex problem that affects 1 in 5 Australians.

It’s exhausting, a bit tricky and hard to know where to start.

Fortunately, with our book Managing your pain: An A-Z guide you can start anywhere!

Medications, sleep, laughter, fatigue, breathing. Think of it as a ‘choose your own adventure’ to getting on top of your pain.

The book emphasises practical strategies tried and tested by people like you – consumers living with musculoskeletal conditions. There are also a bunch of quotes and useful insights to keep it real.

You might also like…

We also have a helpful kids pain book called The worst pain in the world. It’s beautifully illustrated and loaded with practical advice for children living with pain (not just those with arthritis). It also gives kids who don’t live with pain an understanding of what their friends or family are going through.

Lisa Bywaters

27/May/2018

Do you get enough calcium and vitamin D? Along with regular exercise, they’re important for bone health.

Calcium

Almost every cell in your body uses calcium in some way.

Most of the calcium is stored in your bones. They act as your calcium bank. You need to make regular ‘deposits’ to cover the ‘withdrawals’. The rest is found in your blood and body fluids.

If you don’t have enough calcium in your diet to maintain adequate levels in the blood, then your body withdraws calcium from your bones. If calcium is constantly taken from your bones, they’ll become weaker over time.

For adults the amount of calcium required each day is between 1000 – 1300mg – the exact amount depends on your age and gender.

Calcium can be found in lots of foods – including dairy food, oranges, sardines and salmon, almonds, tofu, baked beans, green leafy vegetables.

Calcium is listed on the nutrition panel of packaged foods – so check to see how much is in the foods you buy.

If you can’t get enough calcium in your diet, talk with your doctor about whether a calcium supplement may be necessary.

Vitamin D – the sunshine vitamin

Vitamin D is essential for strong bones for many reasons. It helps increase the absorption of calcium and phosphorous from the small intestine, helps regulate the amount of calcium in your blood and helps strengthen your skeleton. It can also assist with muscle function and reduce your risk of falls.

The main source of vitamin D is sunlight so you need to expose your hands, face and arms to the sun every day. The amount of time you need to do this depends on where you live, the time of the year and the complexion of your skin. Osteoporosis Australia has developed a chart to help you work this out.

In Australia we have high levels of skin cancer, so you also need to make sure you expose your skin to the sun safely. SunSmart has developed an app which will help work out when it’s safe.

Vitamin D can also be found in small quantities in foods such as: fatty fish (salmon, herring, mackerel), liver, eggs and fortified foods such as low fat milks and margarine, but it’s unlikely that you’ll be able to get enough vitamin D through your diet alone.

If you aren’t able to expose your skin to the sun regularly (e.g. you’re a shift worker, you have a condition that makes your skin sensitive to sunlight), you may be deficient in vitamin D. It’s important to discuss this with your doctor. Vitamin D supplements may be needed.

Take action for the health of your bones and find out more about calcium, vitamin D and osteoporosis.

Contact our MSK Help Line on 1800 263 265 and speak with a nurse or our trained volunteers for information.

Lisa Bywaters

27/May/2018

Essential for life

Did you know that more than half of your body is made up of water?

Water lubricates and cushions your joints, aids digestion, prevents constipation, keeps your temperature normal and helps maintain your blood pressure.

We lose water constantly when we breathe, sweat and go to the toilet, so you need to replace this water. If you don’t, your body can’t work as well as it should. You’ll feel thirsty, and you may experience symptoms like dizziness or light-headedness, tiredness or get a headache.

The amount of water you need each day varies from person to person and from day to day. There’s no ‘one size fits all’.

Things like your age, gender, health and environment will affect how much water you’ll need. You’ll notice that you drink more in warmer weather, and when you’re physically active, compared to the amount you drink when you’re sitting at home on a winter’s night.

Some people find it difficult to drink enough. If that’s you, here are some suggestions to help you get enough water every day:

buy a good quality water bottle and keep it with you at work, in the car, when you’re exercising. Many parks and public places have water refill stations so you can fill your water bottle up when you need to.
count your other drinks (e.g. fruit juice, milk, herbal tea) and some of your foods (e.g. soups and watery foods like celery and melons) as they also add to your daily water intake.
create triggers – e.g. have a glass of water after you use the toilet, or when you walk through the kitchen
jazz it up by adding lemon, ginger or some other flavouring to your water.
set reminders on your phone or computer.
have a glass of water each time you eat. If you’re out for a meal, ask for water for your table.
track your water intake on your fitness tracker or health app.
alcohol and drinks containing caffeine (e.g. coffee, tea, cola) are diuretics, which means they make you go to the toilet more often and lose water through urine, so try to consume these in moderation.
if you’re concerned that you’re not getting enough water, or you’re not sure how much water is right for you, talk with your doctor.

Make drinking enough water an important part of your daily routine. Once you get in the habit, you’ll find it’s something you do automatically, and you’ll feel great!

Lisa Bywaters

26/May/2018

And that’s just what they’ll do

Walking is a great way to exercise. It costs nothing, it’s suitable for most people, and it gets you out and about.

I love walking. I take a quick walk around the block during the day if I can manage it, but I always make sure I get out after I get home from work. I find it’s a fantastic way to relax after a long day at work.

For me the important thing is to get changed and put my walking shoes on as soon as I get home. If I sit down, or get distracted by others, the opportunity disappears.

I grab my MP3 player, put on a podcast or music, and head out. The fresh air, the exercise, and listening to something interesting is a great mood booster.

On the weekend I like to explore new areas, so I hop in the car, pick up a friend, and we walk in a park, the bush, in the CBD, at the beach. This keeps my walks interesting, and I also have the benefit of discovering new places.

If you don’t exercise much, walking might be a good way for you to build up your activity levels – though be sure to talk with your doctor first to get the all-clear. Then start slow.

Try walking 30 minutes a day on most days of the week and you’ll really notice the health benefits. It can help you lose weight, or maintain a healthy weight, it can lift your mood, help you get a good night’s sleep, improve your bone and joint health and increase heart and lung fitness.

If you can’t walk 30 minutes at a time, break the walking up over your day. Three 10 minute walks, six 5 minute walks…it all adds up.

Walking tips

Wear comfortable, appropriate clothing and shoes.
Warm up and cool down to prevent injuries or pain.
Make it social – walk with a friend, your family, kids, the dog.
Listen to music, audio books, podcasts.
Make it a part of your regular routine – go at the same time each day – e.g. after/before work, after lunch.
Explore new places to walk.
Take a water bottle – it can be thirsty work!
Track your walking with a pedometer or fitness activity tracker.
Increase the distance of your walks and intensity of your walks over time.
Take your walk inside if it’s raining or a hot day – walk in a shopping centre, around the office, around your house.
Join a walking or bushwalking group.

So what are you waiting for? Grab your walking shoes and get out there!

Lisa Bywaters

26/May/2018

Make your life easier with aids, equipment and other gadgets

Do you find that at times you struggle with everyday tasks?

When you have a musculoskeletal condition, simple things like pulling on your shoes, opening jars, combing your hair or sitting for long periods can sometimes become difficult and painful.

The good news is there are a variety of aids, gadgets and other equipment available to help you manage. They can also help reduce stress on your muscles and joints, save energy, prevent fatigue and basically make your life easier.

There are gadgets that can help you with everything from cooking, cleaning, getting dressed, driving, gardening, using technology and working.

Some things – e.g. kitchen utensils or gardening tools with thick handles that are easier to hold– can be found in many of the stores we already shop at.

Other items need to be bought from specialty stores or pharmacies. Or you may be able to modify objects that you already own – e.g. if you have sore hands, foam tubing can be used to create an easier grip on your pens.

Because there are so many options, it’s helpful to speak with an occupational therapist (OT) to get specific information and advice.

OTs work in the public and private sectors. You can access them through public and private hospitals, community health centres, independent living centres and private practice.

As well as helping you with aids and equipment, OTs can help you learn better ways to do everyday activities to help you:

protect your joints
reduce the pain caused by doing certain activities
save energy.

They can also provide advice about pacing your day and activities so you can achieve a balance between activity and rest.

The important thing to keep in mind is that there are many aids and gadgets available that can make your life easier. You don’t have to struggle.

Talk with an OT today.

You can also contact our National Arthritis and Back Pain+ Help Line on 1800 263 265 and speak with a nurse for information about living well with a musculoskeletal condition. We’re here to help!

Lisa Bywaters

26/May/2018

And calm that inner voice

We all talk to ourselves.

From the time you wake up to the time you go to bed, that voice inside your head can influence how you feel, how you act and how you manage your pain.

This self-talk can be helpful and positive – ‘it’s a beautiful day and a gentle walk in the park will help me loosen up after sitting all day’; or negative and unhelpful – ‘everything hurts and if I go for a walk it’ll make things worse’.

Negative self-talk can affect how you see yourself, your life and your future. It’s that pessimistic, critical voice that focuses on the bad.

When you hear yourself say something negative ask yourself:

Am I keeping things in perspective?
What can I do to change the thing I’m feeling negative about?

Try and turn the negative around and put a positive and optimistic spin on it. It can be difficult, but it’s definitely worth the effort.

For example:

Negative – I’ve tried everything for my pain and nothing works
Positive – Mindfulness seemed to help a bit, I should give it another go and practise more often.

Tips

Stick post-it notes around you with positive, upbeat messages – e.g. ‘I look great today!’; ‘I control my pain, it doesn’t control me’; ’I enjoy exercise and it makes me feel good’.

If you wouldn’t say it to another person, don’t say it to yourself. We’re often kinder and have better perspective when we’re thinking of others.

Surround yourself with positive, happy people. If you have friends or acquaintances who are constantly negative or critical, that can affect how you feel. Talk with them about how their attitude makes you feel, or limit the time you spend with them.

Seek professional help if you’re struggling. Make an appointment to see a psychologist or counsellor. They can give you some strategies and tools to help.

By taking control of the negative voice in your head, and practising positive self-talk, you’ll feel much more upbeat, happy and feel like you can take on the world!

So grab some post-it notes, a pen, and start writing some encouraging and positive messages.

Newer Posts

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READ OUR BLOG

Finding the needle in the treatment haystack

Plain language information at your fingertips

Want to get involved?

Thalia’s top 5 pain management tips

Written by Thalia Salt

My top 5 pain management tips

Our guest blogger

How to Manage Your Chronic Illness

Gathering your all-star support team

Written by Amanda Sobey

Health professionals

Your personal cheer squad

Studying?

In the workplace

On the road to wellness

Our guest blogger

In the same boat

Support is available from people just like you

Pain A-Z

A book by people like you

Calcium and vitamin D

Calcium

Vitamin D – the sunshine vitamin

Water

Essential for life

These ‘shoes’ are made for walking

And that’s just what they’ll do

Go go gadget!!

Make your life easier with aids, equipment and other gadgets

Be kind to yourself

And calm that inner voice

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