fiction - Musculoskeletal Health Australia (MHA)

27/Aug/2020

…in books, movies and TV?

One in three people lives with a musculoskeletal condition. 1 in 3. But it was almost impossible to find any decent books, TV shows or movies that feature realistic portrayals of people living with these conditions, or living with chronic pain. Even when you extend it to people living with chronic illness in general, which is an even bigger proportion of the community, it’s a tough slog through mediocrity.

I was astounded at the lack of characters living with these conditions. And when I did find some, I found many to be annoying, improbable and insulting.

Many of the stereotypes used include:

the person addicted to pain medications
the person who’s just too good to be true – nothing turns their frown upside down because they’re amazingly brave and stoic – they conquer all
the person who’s angry all the time, hates the world and everyone in it.

Few real people are like this all the time. Some elements may appear in our personalities and our lives, but no one is this one dimensional. So it’s sad that this is the way we’re portrayed.

It was also really depressing to see how some conditions – particularly fibromyalgia – are disparaged and often treated as a punchline. That’s so unfair.

So here’s my call to action – before I even delve into the stories I did find – let’s get our stories out there!

We can create stories and characters that are multi-faceted – we know people have more than one side or feature – because we are those people. We’re good, bad, positive, negative, strange, unique, parents, siblings. We work, we study, we get sad, we love, we hurt. We are and do all of these things, often at the same time! There’s so much more to a person that an addiction or stoicism.

So use whatever medium inspires you – fiction, film, photos, art, humour – and share it with us. We’d love to see it.

And if you’ve come across some great characters that we’ve missed in this list – let us know. We’ll add them to our blog.

Ok, rant over.

Here’s the list of the books, movies and TVs I did come across that featured more interesting characters. And a confession here –I’ve only seen/read a few, but have added lots to my enormous ‘must watch list’ and my towering ‘to be read’ pile.

Renoir (movie)

Based in the summer of 1915 in the French Riviera, this movie features an ageing Pierre-Auguste Renoir (Bouquet), dealing with the loss of his wife, the effects of rheumatoid arthritis, and the terrible news that his son Jean (Rottiers) has been wounded in action. But then a young girl (Théret) enters his world and Renoir is filled with a new, unexpected energy as the beautiful Andrée becomes his last model. Then Jean returns home to recover from his wounds and queue the love story.
Director: Gilles Bourdos
Year: 2012
Stars: Michel Bouquet, Christa Théret, Vincent Rottiers
Language: French (English sub-titles)
IMDB: https://www.imdb.com/title/tt2150332/

Words and pictures (movie)

In this romantic comedy, an art instructor (Binoche) with rheumatoid arthritis and an English teacher (Owen) form a rivalry that ends up with a competition at their school in which students decide whether words or pictures are more important.
Director: Fred Schepisi
Year: 2014
Stars: Clive Owen, Juliette Binoche
IMDB: https://www.imdb.com/title/tt2380331/?ref_=fn_al_tt_1

The Good Doctor (TV)

This popular TV medical drama revolves around young surgeon Dr Shaun Murphy (Highmore) who has autism. In season 3 one of his colleagues, Dr Morgan Reznick (Gubelmann) opens up to senior surgeon Dr Glassman (Schiff) about having been diagnosed with rheumatoid arthritis. She needs his help to get a cortisone injection so she can perform her first surgery. She discusses with him her concerns about how the other surgeons may assume RA will affect her ability to operate and do her job.
Creator: David Shore
Year: 2017-
Stars: Freddie Highmore, Richard Schiff, Fiona Gubelmann and many others.
YouTube: Dr Reznick wants Dr Glassman to keep her condition a secret

The Big Sick (movie)

Written by Emily V Gordon and her husband Kumail Nanjiani, this romantic comedy is loosely based on the real-life courtship before their marriage in 2007. While they were dating Gordon became ill and was put into a medically induced coma. She was later diagnosed with Still’s disease.
Director: Michael Showalter
Year: 2017
Stars: Kumail Nanjiani, Zoe Kazan, Holly Hunter, Ray Romano
IMDB: https://www.imdb.com/title/tt5462602/

Five feet two (doco)

This documentary follows Lady Gaga as she gets ready to release her fifth album and struggles with the physical and mental ups and downs. During the documentary she talks openly about her fibromyalgia.
Director: Chris Moukarbel
Year: 2017
Stars: Lady Gaga
IMDB: https://www.imdb.com/title/tt7291268/

Maudie (movie)

This romantic drama is based on the real life story of Canadian folk painter Maud Lewis (Hawkins). Maud was born in 1903 and diagnosed with juvenile arthritis as a child. This movie tells the story of love of painting, her marriage to Everett Lewis (Hawke) and her recognition as an artist.
Director: Aisling Walsh
Stars: Sally Hawkins, Ethan Hawke
Year: 2016
IMDB: https://www.imdb.com/title/tt3721954/?ref_=fn_al_tt_1

Cake (movie)

Cake tells the story of Claire (Aniston) who struggles with chronic pain and depression after a car accident that also killed her son. She becomes addicted to pain killers (sorry) and joins a chronic pain support group. Through this group she meets Nina (Kendrick) who later commits suicide. The story goes on to explore Claire’s relationship with Nina’s husband (Worthington) and son, her relationship with her estranged husband and how she tackles physical and emotional pain. https://muscha.org/persistent-pain/
Director: Daniel Barnz
Stars: Jennifer Aniston, Anna Kendrick, Sam Worthington
Year: 2014
IMDB: https://www.imdb.com/title/tt3442006/

Cursed (YA book)

As if her parents’ divorce and sister’s departure for college weren’t bad enough, fourteen-year-old Ricky Bloom has just been diagnosed with juvenile arthritis. Her days consist of cursing everyone out, skipping school–which has become a nightmare–daydreaming about her crush, Julio, and trying to keep her parents from realizing just how bad things are. But she can’t keep her ruse up forever. https://muscha.org/juvenile-idiopathic-arthritis/
Author: Karol Ruth Silverstein
Year: 2019
Publisher: https://www.penguinrandomhouse.com/books/588565/cursed-by-karol-ruth-silverstein-author/

Sick kids in love (YA book)

Isabel has one rule: no dating. All the women in her family are heartbreakers, and she’s destined to become one, too, if she’s not careful. But when she goes to the hospital for her RA infusion, she meets a gorgeous, foul-mouthed boy who has her rethinking the no-dating rule and ready to risk everything.
Author: Hannah Moskowitz
Year: 2019
Publisher: https://www.panmacmillan.com.au/9781640637320/

Lisa Bywaters

21/Jan/2018

The final instalment of our staff summer reading suggestions.

Enjoy the mix of fiction and non-fiction, and hopefully you’re inspired to read something new, different and exciting.

And finally, in the words of Voltaire “Let us read, and let us dance; these two amusements will never do any harm to the world.” Enjoy!!

One Hundred Years of Solitude – Gabriel Garcia-Marquez
This is Latin American magical realism at its finest and my favourite book. It’s absurd, funny, poetic and haunting.

National Geographic Rarely Seen: Photographs of the Extraordinary
I love a good photo book, and Nat Geo probably does it the best. Every page you turn you marvel and wonder at the extraordinary things to be found in our world. Stunning.

When Breath Becomes Air – Paul Kalanithi
This autobiography is by a 37 year old neurosurgeon, dying from stage 4 lung cancer. In his book, he reflects on life – what it means to live a meaningful life and what makes life worth living. It’s a hard book to read at times, but extremely moving. Have a box of tissues nearby when you read this one.

1666: Plague, War and Hellfire – Rebecca Rideal
If you lived in England in 1666, yikes! You were at risk of contracting the plague, England was at war with the Dutch, and the Great Fire of London devastated the city. But alongside this, some amazing progress was being made in art and science. This historical text is brought to life in vivid detail through the eyes of some of the important people of the time – from Newton to Milton to Wren. It’s a fascinating read.

Working Class Boy and Working Class Man – Jimmy Barnes
Jimmy Barnes is one of Australia’s most enduring music legends. With his first book he explores his childhood – and I’m amazed he lived through the violence, drugs and excess to become a force in the music industry. I’m halfway through his second book, and it’s as gripping as the first. I love the insight these honest and gritty books give us about Barnesy.

Quick & Easy 5-Ingredient Food – Jamie Oliver
Our last book is a little different, in that it’s a cookbook. However several of our staff recommended it for our summer reading list. And really, summer is the time when many of us have a little extra time to have fun and experiment in the kitchen. In typical Jamie style, the recipes are easy to follow and delicious. And by using 5 key ingredients, as well as staples from your cupboard, it’s cooking that many of us can do…no muss, no fuss.

Lisa Bywaters

10/Jan/2018

Our staff love to read, so we had to make this a 3-parter. There were just too many books!

If any of these books have tickled your fancy, go out and grab a copy from your local bookstore, from the library, from a friend or download a copy onto a mobile device. Also check out your local op shop – it’s amazing what books you can find there.

Finally, if you love the sound of these books, but you aren’t much of a reader, check out subscription audio book services such as Audible, or the audio book collection at your library.

Goldfinch – Donna Tart
I loved it. Couldn’t put in down. Fabulous characters and you can’t wait to see what happens to them. It’s amazing story told through a young teenage boys eyes as he comes to terms with a life changing event centred around a classic art piece in the back drop of the underworld art trade – never cried so much as I did with this book.

What If?: Serious Scientific Answers to Absurd Hypothetical Questions – Randall Munroe
If you love the absurd, with some maths and physics thrown in, you’ll enjoy this book a lot. The author answers strange, wacky and wonderful hypothetical questions he’s sent by his readers. So if you’ve ever wondered ‘if the moon would change colour if every person on Earth aimed a laser pointer at it?’ or ‘what would it be like if you travelled in time to the same place 1,000 years ago, 10,000 years ago, or forward in time 1,000,000 years?’ The author gives detailed explanations and reasoning. Lots of interesting, nerdy fun.

Tex – Tex Perkins
Aussie bad boy of rock Tex Perkins – front man of Beasts of Bourbon and The Cruel Sea – writes about the good, the bad and most definitely ugly times of Aussie rock’n’roll. Getting into this book took me back to the days of going to pubs and letting lose to Tex’s gravelly voice as he belted out everything from punk to country.

Fishing for Stars (The Persimmon Tree #2) – Bryce Courtenay
Such an interesting fictional telling of a story about life, love, politics and business across Vanuatu and Australia. Like all Courtenay books it’s at times heavy, at times light-hearted. Thoroughly recommend.

The Savage Detectives – Roberto Bolagno
The way that Bolagno writes, particularly this book, makes me feel alive and in love with life.

Wind up Bird Chronicle and IQ84 – Haruki Murakami
Both of these books are totally out there in terms of story line!

One is about a guy whose wife goes missing and then shuts himself up in a well where he can strangely melt into the walls and end up in other places. The other is about an assassin who takes a wrong turn and finds herself in a parallel universe where there are two moons and strange doppelgangers. All in all, I couldn’t put either of those down.

The Farseer Trilogy – Robin Hobb
Hobb is an amazing fantasy writer. I love the story, the characters and especially her writing style, really rich and engaging. You can escape into these books for hours. These books have heart and she shares life lessons she’s learnt through the characters and the events that happen to them and how they deal with them. This makes them memorable and some of the best fantasy I’ve ever read.

Lisa Bywaters

02/Jan/2018

Summer’s here!!

For many of us, this’s a time to recharge, relax and rest so we’re in the best possible shape to begin the new year. Well, once all the holiday festivities are out of the way!! And what better way to relax than to get caught up in a book?

Our staff have provided brief descriptions of some of their favourite reads. From fiction to non-fiction, fantasy to biography, there’s something here for everyone. Enjoy!

The Snowman (Harry Hole #7) – Jo Nesbo
I’m a big fan of the Jo Nesbo Detective Harry Hole series – and his latest is a ripper, literally. There’s nothing like a chilling Nordic thriller to while away the hot summer days!

Meditation: An In-Depth Guide – Ian Gawler & Paul Bedson
I loved this book because it explains how meditation is used to help heal pain and illness and it’s a practical guide which is great for someone who is a bit overwhelmed by the practice of meditation i.e. ME! A great tool to help you get in touch with your inner peace.

Hitchhikers Guide to the Galaxy – Douglas Adams
This series is an oldie, but such a goodie. Laugh out loud craziness as Arthur Dent, a hapless Englishman, is rescued from Earth seconds before it’s destruction to make way for a galactic freeway.

1491: Revelations of the Americas Before Columbus – Charles C. Mann
1491 is a fascinating and creative non-fiction story, about the exploration of pre-Columbian Americas, and the indigenous people who lived there. It is an enjoyable and captivating read, filled with adventure and insight.

The Dresden Files – Jim Butcher
Love this fantasy book series. What’s not to love about Harry Dresden, a wizard private investigator in modern day Chicago. They’re fun, fast-paced books that’ll have you reaching for the next book in the series in no time.

Books That Changed History: From the Art of War to Anne Frank’s Diary
This is a beautiful book to read. It features over 75 of the world’s most celebrated, rare, and important books – from 3000 BCE to the modern day. Each book is thoroughly explored, with gorgeous photos and insightful text. If you love books, you’ll adore this one.

The Couple Next Door – Shari Lapena
‘You never know what’s happening on the other side of the wall’ I just finished this psychological thriller. Didn’t want it to end.

READ OUR BLOG

Where are all the characters with musculoskeletal conditions?

…in books, movies and TV?

Renoir (movie)

Words and pictures (movie)

The Good Doctor (TV)

The Big Sick (movie)

Five feet two (doco)

Maudie (movie)

Cake (movie)

Cursed (YA book)

Sick kids in love (YA book)

Summer of reading – part 3

Summer of reading – part 2

Summer of reading – part 1

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