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09/Dec/2021

Did you know that 52% of Australians are putting off their healthcare due to concerns about COVID-19? (1)

This alarming figure has prompted the Continuity of Care Collaboration (CCC), a network of more than 35 peak bodies, industry and healthcare organisations, to create the #DontWaitMate campaign.

The campaign aims to reassure people that attending their GP, dentist, pharmacist, allied health professionals, and specialists is safe. That it’s safe to get blood tests, skin tests, scans and all other pathology tests.

It’s essential that anyone with chronic or complex health conditions, the elderly, vulnerable communities and people who are immunocompromised have continuity of care so that they’re able to live as well as possible. And that any changes in their health are picked up as soon as possible.

#DontWaitMate campaign also urges anyone who’s been putting off their tests or has noticed urgent and/or new symptoms to pick up the phone and make an appointment today.

Your health is the priority.

CCC explains that there are measures to help you feel safe to access health care needs remotely, e.g. through telehealth, e-prescribing of medicines and home delivery of medicines. If you need to go to a clinic or hospital, personal protective equipment, regular cleaning, and distancing measures are all in place.(2)

It’s all about keeping you safe while managing your ongoing healthcare.

So Don’t Wait Mate. If you’re like me and have a pathology form stuck on the side of your fridge or a poo test in your bathroom drawer, go and get it, pick up the phone, and make that call. Don’t let them expire like I did ?. It just adds to the time you’re waiting to ensure everything’s ok.

Or, if you’ve noticed some changes in your health or body that concern you, make an appointment with your doctor to discuss them.

Because your health is too important to neglect.

Contact our free national Help Line

If you have questions about managing your pain, your musculoskeletal condition, treatment options, mental health issues, COVID-19, telehealth, or accessing services be sure to call our nurses. They’re available weekdays between 9am-5pm on 1800 263 265; email (helpline@msk.org.au) or via Messenger.

Reference

(1-2) Continuity of Care Collaboration
https://continuityofcare.org/


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18/Nov/2021

Ever notice how much governments love acronyms?? Unfortunately, this article is full of them, but we’ll explain what they mean and try to clear up the murky area of chronic disease management (CDM) plans, formerly called Enhanced Primary Care (EPC) plans.

Note: The primary sources for this article is the Australian Government, Department of Health’s chronic disease management resources. Unfortunately this information has not been updated since 2014. Please treat this as general information only, and discuss your specific needs with your GP.

What are CDM plans?

In a nutshell, these plans are a proactive way for you and your general practitioner (GP) to manage your chronic, complex or terminal medical condition/s. The Department of Health defines a chronic condition as ‘one that has been (or is likely to be) present for six months or longer’.

Chronic musculoskeletal conditions fit under this definition.

These plans are prepared by a GP to help eligible people manage their condition/s. The plans set goals to help people manage and hopefully improve their health and wellbeing.

There are two types of CDM plans:

  • GP Management Plans (GPMP) and
  • Team Care Arrangements (TCAs).

GP Management Plans (GPMP)

A GPMP can help people with musculoskeletal conditions by providing an organised approach to their care. It’s a plan that you’ve worked out with your GP that:

  • identifies your health and care needs
  • sets out the services to be provided by your GP
  • lists any other health care and community services you may need
  • lists the actions you can take to help manage your condition.

For example, if you have osteoarthritis in your knees that’s causing you lots of pain, and you’re no longer able to comfortably play tennis or go bushwalking, you and your doctor might decide that losing some weight will improve this situation. However, rather than just agreeing that weight loss is a good idea, a GPMP is an action plan that sets out your clear aims and objectives.

Once this plan has been developed, you should receive a copy to take with you.

Team Care Arrangements (TCAs)

If you need help from other healthcare providers to achieve your goals, your GP may also suggest a TCA.

TCA’s include 5 visits per calendar year to other health care providers. These 5 visits can be to one healthcare provider or spread between several providers.

On the first of January you become eligible for 5 new visits. You’ll need to see your GP about this.

You should also receive a copy of this plan.

Eligibility

This is one of the areas that’s a little complicated, so if you think you might be eligible, it’s best to speak with your GP directly. When you call to make an appointment, let the receptionist know that you’d like to discuss a chronic disease management plan. You’ll need a longer appointment for this.

The Department of Health states that while there’s ‘no list of eligible conditions…these items are designed for patients who require a structured approach and to enable GPs to plan and coordinate the care of patients with complex conditions requiring ongoing care from a multidisciplinary care team. Your GP will determine whether a plan is appropriate for you’. (1)

Costs

Also a tricky area. If a healthcare provider (e.g. dietitian) accepts the Medicare benefit as full payment for the service, you’ll be bulk billed and there’ll be no out-of-pocket costs. However if they don’t, you’ll have to pay the difference between the fee charged and the Medicare rebate. This is often called the ‘gap’.

When you’re making an appointment, be sure to ask what your out-of-pocket costs will be. If the cost isn’t something you can afford, discuss your options with your doctor.

Reviewing your plan

Your plan will need to be reviewed regularly. These reviews allow you to see how much progress you’ve made. If you’re meeting your goals – e.g. losing weight, increasing your fitness – that’s great. If you’re not getting there or having difficulties, a review will allow you to discuss this with your GP and work on solutions or adjust your goals.

Help!

It can seem overwhelming, but your GP and the practice nurse are there to support you on this journey.

Contact our free national Help Line

If you have questions about managing your pain, your musculoskeletal condition, treatment options, mental health issues, COVID-19, telehealth, or accessing services be sure to call our nurses. They’re available weekdays between 9am-5pm on 1800 263 265; email (helpline@msk.org.au) or via Messenger.

More to explore

Reference

(1) Chronic Disease Management Patient Information, Australian Government, Department of Health, 2014.


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18/Nov/2021

Written by Rachel Lea

During the 32 years of living the life of a Lupus Warrior, I’ve come to liken the feeling of battling lupus to the principles of the board game Snakes and Ladders. When the dice rolls, you take the number of steps forward that the dice dictates. Literally one step at a time. When you’re feeling well, and your lupus is under control, you may even land on a ladder and climb up the board a little bit further. When that’s happening, you feel truly happy, as you’re able to maintain a sense of balance and stability. It just feels good.

But then the game can change without warning, and the dice can roll towards a snake. When you hit a snake, it boldly raises its head and hisses at you. Taunting you. Because you know what’s coming. You’ve suffered another setback, another lupus flare. And so you begin to slide. You slide all the way down the back of that slippery snake, sometimes to the bottom of the board. That soaring happiness dissipates as you realise you have to begin the game all over again, and fight your way back up to the top of the board. This is how the game of lupus is played each day. Over and over and over again. At some point, you’ll always fall back down. Why? Because lupus always wins.

So the never-ending tweaking of medication takes place, whether it be increased steroids or methotrexate. This’ll require months and months of tapering back to the dose at which I was originally controlling my lupus. Before that flare took me down. My symptoms of extreme fatigue, joint and muscle pain, fevers, migraine-like headaches, mouth ulcers and hair loss are being treated by these medicines. It’s draining. And bloody frustrating! Particularly when I felt I was managing my lupus and overall health really well, and then, boom!

After thirty-two years of experiencing such flares, I’ve grown to realise that the only way to fight back is to simply let go. Let go of everything. Place myself in a protective bubble and focus on me. Hope that the drugs kick in quickly and move with the pain and discomfort the best way I can. I’ve grown to learn that it takes strength to surrender and put trust and faith in the universe. That even when I’m struggling like this, I’m exactly where I’m meant to be. I know this because when I’ve been too stoic, trying to rise above the pain and fatigue, the resulting flare has been longer and more challenging to overcome.

I grew to learn very early into my diagnosis the benefits of being very gentle and kind to myself. If that means having a teary and a good sook, so be it. If that means I’m in bed for days or even weeks, I’ve no choice but to give in. If it means I’m back on the higher doses of medications, with all of the nasty side effects that come with them, then that’s just the way it is. I just have to roll with it as best I can. I need to let go so I can get back on the game board again and keep rolling the dice.

I’m a kinder, more considerate and less judgmental person because of lupus. I’m more patient and adaptable when faced with new challenges. I’ve recognised that being able to persevere and be resilient in the face of uncertainty is a gift. Self-acceptance cultivates much inner peace, but when my acceptance of life with lupus is tested, I’ve learned to respect what this disease is and what it can do. If I wage a war against myself and push through without enough rest and respite, I’ll be causing more inflammation, more damage, and undo all the good I’m trying to nurture within my body. And that’s no good for me in the short or long-term. I’m managing a disease without a cure, one that’s unlikely to leave me anytime soon.

Not being well enough to continue my beloved vocation of working as a VCE secondary school teacher, I’m currently on another journey of personal growth and acceptance. In addition to having lupus, I’ve also been battling fibromyalgia for 8 years. As I became sicker, teaching became more challenging than usual, even when working part-time hours. I was also working within a combative, negative work environment. I was constantly asking myself, ‘how can I keep moving forward, finding hope and purpose as a chronically ill person in a toxic work environment like this?’ One where people strongly resisted the opportunity to invest more time and effort into creating greater goodwill and positive change that everyone could benefit from. How long could I endure the frustration of working like this and be in the best health possible? And ultimately, the question which intrigued me the most, ‘how do other people, like me, who have invisible chronic illnesses, cope in stressful, challenging workplaces? How do they find their way in the world when their pain is invisible to those around them? ’

With too many lupus flares to bounce back from and a working environment that wasn’t likely to improve, I resigned from my teaching job. It’s been a very isolating, extremely lonely and sad time for me. However, over time I’ve been able to reflect on the challenges of having lupus and working in a difficult work environment. This has resulted in my book ‘Lupus = Lift Up, Persevere, Use Strength’.

I’ve written my book in 3 parts. The first part, ‘Lift Up’, examines the 3 long years it took to diagnose my lupus. I was symptomatic at age 14 and diagnosed at 16. I describe the social, emotional and physical impacts of being ill as a teenager, its effects on my parents and family, and the stress of misdiagnosis and experimental treatment along the way. In part 2, ‘Persevere’, I discuss the struggles of having lupus while finishing school, university and the fear of entering the workplace as a secondary school teacher with a chronic illness. In the final part, ‘Use Strength’, I share the challenges of life in the workplace with an invisible illness and how I’ve tried to maintain hope and perspective.

It’s my greatest hope that my book can offer companionship and unity to fellow Lupus Warriors, chronic illness fighters, their carers and loved ones. I also hope to generate greater understanding and awareness of lupus, and cultivate more compassion and empathy for the challenges of living with a chronic illness. In all of the teachings that having lupus continues to bring, I know I must keep putting into practice what I’ve learned in being able to surrender and embrace the unknown with more courage, grace and acceptance.

Contact our free national Help Line

If you have questions about managing your pain, your musculoskeletal condition, treatment options, mental health issues, COVID-19, telehealth, or accessing services be sure to call our nurses. They’re available weekdays between 9am-5pm on 1800 263 265; email (helpline@msk.org.au) or via Messenger.


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28/Oct/2021

22 February 2022 – This article was written in October 2021. In December 2021, the Australian Government approved and recommended booster shots for all eligible people aged 16 and over. You can find the latest advice on booster vaccines on the Department of Health website.

There’s been a lot of talk in the media recently about boosters and third doses of the COVID-19 vaccines. And the nurses on our Help Line are certainly taking lots of calls about it! So we thought we’d answer some of your questions about this next step in the vaccination rollout.

Honestly, most of us thought that once the majority of Australians were double vaxed, it was smooth sailing ahead. That everything was sorted. Job’s done. Time to ‘get on the beers’ and return to normality. 🍻

But this virus is tricky, and we’re still learning so much about it. Including how to protect ourselves from it.

Fortunately, we can look overseas for information. With Australia’s vaccine rollout months behind countries like the UK, US and Israel, we can learn a lot from their experiences and the data they’re collecting.

We know that after two doses of the vaccines, healthy people have a greatly reduced risk of developing severe COVID or ending up in hospital. Which is fantastic news. Yay for vaccines!

However, we’re seeing that some people with weakened immune systems (immunocompromised) have caught COVID, even though they’re fully vaccinated.

Although we don’t know exactly why this happens, it appears that people who are immunocompromised have a varied response to the vaccine. They do gain immunity, but it’s generally not to the same extent as the general population. And how much immunity they gain depends on their underlying health condition and the medications they’re using.

That’s why the Australian Technical Advisory Group on Immunisation (ATAGI) has recently recommended a 3rd dose of the vaccine to severely immunocompromised people so that they can reach a level of immunity that’s protective. You can check out their list of immunocompromising conditions and therapies here. The Australian Rheumatology Association has also updated their COVID-19 information to include information about third doses. And if you want to know if you need to get a 3rd dose – because the information can be a little confusing – talk with your GP or specialist about your situation.

It’s worth pointing out that the use of additional doses to increase the vaccine’s effectiveness in immunocompromised people isn’t a new thing. It happens with other vaccines, for example, the annual flu shot to boost immunity to the influenza virus. Instead of one flu shot, some people require two.

When it comes to the general population – again using overseas experiences and data – we’re seeing that about 6 months after the 2nd vax, the protection from the vaccines seems to be waning.

A booster shot may be needed if immunity to the virus does start to decrease. The Therapeutic Goods Administration (TGA), in consultation with ATAGI, has assessed the Pfizer vaccine for safety and effectiveness as a booster. As of 27 October 2021, it was provisionally approved for use in those aged 18 and over. The first in line to get it will be those who received their vaccines firsts – way back in February 2021 – so that’s aged care residents, frontline health and quarantine workers. The government is waiting on further advice from ATAGI as to when the rest of the population will receive boosters.

Booster shots may also be required in the future as we see different variants of the virus emerge. Again, as we see with the annual flu vaccination, it’s tweaked each year to keep up with changes to the influenza virus. This may be what happens with the COVID vaccine.

At this stage, the Pfizer vaccine is the only one put forward as a booster. So what does that mean if you received a Moderna or AstraZeneca vaccine for your first two doses?

We’re not sure. Several studies are investigating this very question. It’s possible that mixing different vaccines might broaden your protection. But the research is ongoing, and it’s just too early to say. So it’s a matter of ‘watch this space’.

Finally, it’s essential to recognise that being vaccinated doesn’t stop people from getting COVID. But it significantly reduces the risk of severe disease and hospitalisation. That’s why we need to be vigilant and do all the COVID-safe things we’ve been doing since this whole thing started:

  • wash your hands
  • cover your coughs and sneezes
  • wear a mask (when required)
  • physical distance
  • check in
  • stay home when sick
  • get tested
  • and stay safe.

Contact our free national Help Line

If you have questions about managing your pain, your musculoskeletal condition, treatment options, mental health issues, COVID-19, telehealth, or accessing services be sure to call our nurses. They’re available weekdays between 9am-5pm on 1800 263 265; email (helpline@msk.org.au) or via Messenger.

More to explore


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28/Oct/2021

Photo by AUSVEG

Caitlin, a fifth-generation farmer from the northwest coast of Tasmania and Australian Apprentice of the Year 2020, shares her story about living with arthritis.

I was diagnosed with arthritis when I was 12, turning 13, and in grade 7.

I remember my first attack very well. We were on the Spirit of Tasmania heading over to Werribee for the 2011 Interschool Nationals (Equestrian) and on the boat I had a really sore hip. By the following night, the pain had become unbearable, so mum took me to the hospital. The staff took x-rays but couldn’t find what was causing my pain.

I was then transferred to the Royal Children’s Hospital, where I spent the next three days. After a series of ultrasounds and an MRI, they found a heap of fluid on my hip and diagnosed post-viral arthritis. Even with this diagnosis, I went on to compete and hobble around on crutches at Nationals!

When I got home to Tasmania, I went to my GP and was referred to a rheumatologist. It was then I was diagnosed with severe idiopathic rheumatoid arthritis. Then the journey began…???

Has your condition or living with pain impacted your social life, work, friends etc?

It had a huge impact on the rest of my high school years. I took prednisone daily for two or so years, which made me extremely puffy in the face. The people who knew what was going on were kind, but there were also some unkind people. It affected my confidence, I became depressed, moody and I didn’t even want to ride my ponies for a while.

Also, because I usually competed every weekend and rode a lot, I never really felt that I belonged with a particular group at school. And so, towards the end of school, I was quite happy to do homework in the art rooms at recess and lunch. I had some friends, but none who understood what it was like for me, or my lifestyle with the horses and farm, except for my best friend, who lived an hour away.

Since grade 12, life has been on the up and up. I’ve found my ‘people’ by developing greater friendships through horses, joining Rural Youth and getting involved with local agricultural networks where I fit in with like-minded people. Sometimes I’m exhausted and not up to some activities, but I know how to balance my life to keep myself healthy (most of the time! ?) and to be honest with how I’m feeling and when I need to take a break.

Work-wise, working for myself and my family is very handy as I can be more flexible around workload and how I do things. My family is super supportive and will help me in any way they can if I get sick, have an attack or need to go to appointments.

What’s life like living with arthritis?

Every day is different! When I was younger and trialling a lot of different medications, it was a rollercoaster to say the least! I would be nauseous all the time if I was on methotrexate, and tired to the point where I would fall asleep not long after getting home from school. Touch wood, it seems to be somewhat under control now.

I’ve found Actemra (tocilizumab) to be the best medication for me so far. I have an infusion at the hospital once a month. However, I’m starting a new medication next week due to the worldwide shortage of Actemra as they’ve been using it to treat people with COVID. So we’ll see how that goes, as it requires me to go back on to methotrexate.

I could’ve opted for a different medication, such as a daily tablet or self-injection, but I wasn’t a fan of those options. I self-injected twice weekly for a few years, and in the end, I couldn’t mentally do it anymore. I’d get worked up about having to do it, and I found the medication wasn’t working as well. With my busy lifestyle, sitting down in the hospital for a couple of hours once a month actually suits me quite well!

How does your condition impact working and running a farm?

Hydraulics were invented for a reason! Don’t get me wrong, it’s still a very physical job, but I enjoy it as it helps me stay fit and active.

When I’m fitter, I find I don’t get as sore, or I’m at least able to handle more exercise. I also find it helps me with my mental health too. I’m lucky to be able to run two of my own businesses. One through coaching dressage and beginner riders and creating freestyle music. The other is the farm with my partner that we lease from my grandparents. I find that long days in the tractor and very repetitive movements make me stiff and sore, but I’m sure many others find that as well.

Does horse riding help?

It helps in the fact that it takes my mind off the pain while I’m riding. I do feel it afterwards though! On the days I’m in so much pain that I struggle to walk, I can ride, and the horse can become my legs for an hour. When I was younger, I was graded as a para-athlete due to the effects of my arthritis. This wasn’t a bad thing as it allowed me to make so many connections with other para-athletes. I realised that I didn’t have it bad at all, and those I felt had it worse than me were often more determined and more able than some able-bodied riders I know! The only barrier is our mind and what we think we can do. So that really allowed me to push myself to be a better rider and then pass that on when teaching children or adults with learning or physical disabilities.

How important are strong connections – e.g. family, friends, partner – when you have arthritis and chronic pain?

Having a supportive team around you is essential. I’m lucky to have a very supportive family, and my partner Owen is amazing.

There can be days when I need help with basic things like getting undressed, getting into the shower and putting my hair up or the like. For the most part, I’m totally independent, but I know that when I am going through an attack, it won’t be pleasant, and I’ll need to rely on that support.

I also have Hashimoto’s disease and fibromyalgia, so it all hits my immune system hard. From restless legs to feeling pain for the smallest of things, it can be really frustrating. So to have people to comfort you when it gets too much is really important. Sometimes we all need a hug and to be told it’s all ok to get us through the day. ?

My best friend for the last 10 years has seen me go through everything, from being really sick to the healthiest I’ve been and everything in between. We’ve travelled overseas and look forward to more adventures, hopefully soon.

I first told my story publicly on Landline earlier this year. I had messages from people from all over thanking me for sharing my story and inspiring them to go for their dreams too. So to know that my story has helped others makes me so happy!

Do you have any tips for other people who have arthritis or other musculoskeletal conditions?

The biggest piece of advice that I can give is finding what makes you happy. When I’m focused, the rest seems to blur out. Get to know your body and what you can handle, find people in similar situations and ask them as many questions as you can, and then be that person for someone else. We are all in this together and shouldn’t feel alone! There’s no reason we can’t do the things we wish to do most in today’s world.

Contact our free national Help Line

If you have questions about managing your pain, your musculoskeletal condition, treatment options, mental health issues, COVID-19, telehealth, or accessing services be sure to call our nurses. They’re available weekdays between 9am-5pm on 1800 263 265; email (helpline@msk.org.au) or via Messenger.

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28/Oct/2021

When you live with persistent or ongoing pain, it can sometimes feel like it’s taking over your life. And the usual things you do to manage your pain don’t seem to have the same effect.

This can significantly impact your ability to do your daily tasks, work, be social, and be active. It can also affect your sleep quality, your emotions and mental health. This can then exacerbate your pain and become a vicious cycle.

The good news is that there’s lots of support available to help you break this cycle.

Breaking the pain cycle

There is a range of different health professionals who can work with you to manage your persistent pain. You may see them on an ongoing basis, or you may visit them from time to time as needed.

Your general practitioner (GP) is central to your care and will help you access other health professionals and services. Make sure you have a doctor who knows you, at a practice that can see you when you need to be seen. Having the same doctor, rather than moving from one doctor to another, means that your care will be consistent and organised. This will lead to the best possible outcomes for you.

Physiotherapists (or physios) use a variety of techniques (e.g. exercise, massage, heat and cold) as well as education and advice to reduce pain to allow you to gradually increase your activity levels. They can also show you how to increase mobility, strength and functioning by developing an exercise program for you. Find a physio.

Exercise physiologists can help you improve your health and fitness through clinical exercise programs tailored to your specific needs and support to live a healthy lifestyle. Find an Accredited EP.

Occupational therapists (or OTs) help you learn better ways to do everyday activities such as bathing, dressing, working or driving. They can also provide information on aids and equipment to make daily activities easier. Find an OT.

Psychologists, psychiatrists and other mental health professionals can help you work through your feelings, particularly if you’re feeling anxious or depressed. They can also assist you with goal setting, prioritising activities and coping strategies.

Pharmacists can help you with information and advice about medications – both prescription and over-the-counter.

Pain specialists are doctors who’ve undergone additional training to diagnose and treat pain. They come from a variety of different medical specialties such as psychiatry, anaesthetics and general practice. They often work with a team of other health professionals to treat all aspects of your pain, from the physical, to the mental and emotional aspects

Pain management services and multidisciplinary pain clinics provide a holistic and coordinated approach to managing pain. Their programs are designed to specifically address the range of factors affecting your recovery, including:

  • physical factors
  • psychological issues, including your mood, stress or poor sleep
  • social factors including how you manage your activities at home and how you can return to work safely.

You’ll learn from health professionals such as doctors, physiotherapists, psychologists, occupational therapists and nurses how to manage your pain more effectively with the least side effects.

Talk with your doctor about whether a pain management program would be helpful for your situation. And check out the National Pain Services Directory by Pain Australia. It provides more information about the different types of pain services and a handy search function to find a service near you.

Family and friends can be a great source of support and encouragement, so keep them involved. How much or how little you tell them about your pain issues is up to you, but just knowing they’re there if you need them can be a great source of comfort.

Contact our free national Help Line

If you have questions about managing your pain, your musculoskeletal condition, treatment options, mental health issues, COVID-19, telehealth, or accessing services be sure to call our nurses. They’re available weekdays between 9am-5pm on 1800 263 265; email (helpline@msk.org.au) or via Messenger.

More to explore


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07/Oct/2021

The people in our lives bring so much colour and richness to our days. Our family and friends, work colleagues, local baristas, intimate partners, food deliverers, healthcare providers, neighbours, fellow gamers and dog walkers – all of the ordinary and intimate relationships we have are important and connect us to our world.

Apart from the warm fuzzies we get from having these people around us, healthy relationships are good for our physical and mental health. They help us feel less stressed, reduce feelings of loneliness, distract us from pain, boost our immune system and make us feel happier and more optimistic. They’re practically a tonic for all that ails!

And that’s why it’s so important that we nurture these relationships.

This is the first of two articles exploring ways we can tend to our close relationships, to ensure they remain strong and supportive. We begin with the relationship with a partner, spouse, or significant friend.

Physical vs emotional intimacy

When we think about intimate or close relationships, we often think of physical acts of intimacy – holding hands, cuddling, kissing, hugging and having sex. They’re an essential element in our romantic relationships. But we also need emotional intimacy for deeper connections with those we have or hope to have a committed relationship with.

Emotional intimacy involves each person opening up to the other, allowing their vulnerabilities to show, and sharing their deepest feelings and thoughts. To do this, each person needs to feel safe and supported to be themselves, ‘warts and all’. This level of intimacy takes time. And it requires open, honest communication and ongoing work.

“Intimacy is the capacity to be rather weird with someone
– and finding that that’s ok with them.” Alain de Botton

Emotional intimacy occurs not only within committed, romantic relationships, it can also happen within platonic relationships, for example, with your bestie, BFF, a sibling, or with someone else you have a close bond.

The following strategies are focused on nurturing romantic relationships, however most can be used for platonic relationships as well 😊.

Strategies for nurturing your relationship

Share your deep, inner thoughts, feelings, beliefs, fears, needs, pain and worries – not just the superficial stuff.
To really develop that deep connection and understanding of each other, share the things that make you ‘you’. We’re all so different and have had different experiences, challenges, traumas, victories and lifestyles. This shapes who we are, and we tend to keep much of this to ourselves.

However, sharing these things with your partner over time creates intimacy as your relationship grows and deepens. This has to be a two-way street. You both need to be open and honest about what matters to you, as you feel comfortable and safe to do so.

“Never idealize others. They will never live up to your expectations.
Don’t over-analyze your relationships. Stop playing games.
A growing relationship can only be nurtured by genuineness.” Leo F. Buscaglia

Share how much they mean to you.
We all like to hear how much we mean to someone – especially when it’s out of the blue. Try not to become complacent with your relationship or take your partner for granted. Tell them how much you appreciate them and how much they bring to your life. Show them how much they mean to you – buy the book they’ve been wanting, prepare a picnic full of their favourite things, give them a hug, fold the laundry, place little love notes or tokens in unexpected places. Be creative and be honest 🧡.

“Love is a two-way street constantly under construction.” Carroll Bryant

Share, learn and explore sexual desires, so you both feel satisfied.
This adds to your emotional connection. However, sometimes our condition, pain, anxiety and the madness of life in general can impact our desire to be physically intimate. Check out our blog on sex, intimacy and musculoskeletal conditions for tips to help you get your groove back.

“Sex without love is merely healthy exercise.” Robert A. Heinlein

Share time together outside of your day-to-day routine.
Remember the excitement when you first met? The first thrilling time your hands brushed, when you couldn’t wait to see each other? Try to rekindle some of this excitement, so you get to be together as lovers, partners, and friends – not as mum/dad/worker. Make the time to check in with each other, even when it feels like the world is taking over. This can be really challenging – we’re all so busy. So you may need to schedule time for this (not sexy, but often necessary). And make sure you unplug from all technology and put your phone away. It’s worth the effort. Take this time as a loving couple to talk about your day, feelings, needs, hopes and dreams, and just connect.

“A dream you dream alone is only a dream.
A dream you dream together is reality.” John Lennon

Share the difficulties, and where possible, work on solutions together.
If you have problems or difficulties that relate to your condition, job, other people, etc., share them. Don’t keep them bottled up. Having someone to discuss your issues with can help bring clarity. Or at least help you feel your emotions are important and validated.

If the problems relate to your relationship or home life, this can be tougher. Especially if you both have strong feelings about the matter. In this case, it’s really important to be respectful to each other, listen, and work together to come up with a solution. And be prepared to compromise so the solution feels fair to both of you. Remember, we’re all different, and we do and see things differently. This is a good thing (how boring would it be if everyone saw things the same way?), but it can sometimes be really frustrating. So if you become angry, take some time to breathe, reflect on the situation, and come back to it when you both feel calm.

However, sometimes it can be hard to get past an issue, and you may need external help to resolve it. See the section below on managing conflict.

“Nothing is perfect. Life is messy. Relationships are complex.
Outcomes are uncertain. People are irrational.” Hugh Mackay

Share the load.
We like to think of ourselves as superhuman at times and try to do it all without asking for help. Even when it may be needed 😫. But this isn’t sustainable. We’ve all ended up in a heap doing this.

Again, it comes down to open, honest communication. Someone who doesn’t have a musculoskeletal condition can’t fully understand what it’s like and how frustrating it is to be fine one day and thoroughly shagged the next. If there are things you’re struggling with – all the time or just occasionally – discuss these with your partner. Look for ways to share the load – with your partner, children, housemates, other family members, or even hire someone to do the chore/task.

“Being deeply loved by someone gives you strength,
while loving someone deeply gives you courage.” Lao-Tzu

Share fun times.
Make time for having fun, being silly and finding (and celebrating) the joy in life. This can be challenging when you live with pain, the uncertainty of living through a pandemic, work stress and household craziness. But it’s so rewarding. Watch a silly movie, dance in the back garden, share funny memes during your day, go skinny dipping after dark 😍. Laughter and shared fun create another level of intimacy, as well as a twinkle to the eye and a healthy glow to the skin (especially if the water is cold 😉).

“We’re all a little weird. And life is a little weird.
And when we find someone whose weirdness is compatible with ours,
we join up with them and fall into mutually satisfying weirdness
– and call it love – true love.” Robert Fulghum

Have outside interests (and share yourself).
In case you’re starting to feel nauseated by all the saccharine togetherness 🤢, it’s also essential that each person has independent interests. There are often things that make us really happy but are of no interest to our partner – think sports, book clubs, crafts, parent groups, community gardens, study groups, cooking classes, gaming etc. Instead of dragging your partner along, take that time for yourself. It helps you pursue the things that make you feel fulfilled, and you can share your experiences and happiness with your partner. When you both have these opportunities, life is more exciting and rewarding.

“A great relationship is about two things:
First, appreciating the similarities and second, respecting the differences.” Unknown

When it isn’t always smooth sailing: managing conflict

All of the suggestions we’ve provided require commitment, time and ongoing work. But sometimes, you can work and work hard, but arguments and conflicts still arise. Especially when you’re living with the stress of unpredictable health issues, COVID-19, family commitments and all the other complicated things adulthood brings with it.

If you’re both committed to working through these issues, but feel like you can’t resolve them on your own, consider talking with someone you trust about it. This may be a close family friend or family member, or it may be a professional.

Getting help
Family Relationship Advice Line is an Australian Government service that helps families affected by relationship or separation issues. It can also refer callers to local services that provide assistance. Call 1800 050 321.

Relationships Australia provides a range of counselling services delivered face-to-face and online. Find out more about the counselling services available on their website. Or call 1300 364 277.

Ending a relationship
If you’re not committed to resolving relationship issues and want to end it, read ‘Fourteen ways to break up better: How best to minimize the pain in a painful situation’.

Abuse or violence
Using power, abuse or violence against another person is never ok. If you need help, it’s available. For safety and support, call 1800 RESPECT (1800 737 732) for confidential information, counselling and support. They operate 24 hours, 7 days a week.

Read the second instalment of this series: Nurturing relationships: Family and friends

“Maybe you don’t need the whole world to love you.
Maybe you just need one person.” Kermit the Frog

Contact our free national Help Line

If you have questions about managing your pain, your musculoskeletal condition, treatment options, mental health issues, COVID-19, telehealth, or accessing services be sure to call our nurses. They’re available weekdays between 9am-5pm on 1800 263 265; email (helpline@msk.org.au) or via Messenger.

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07/Oct/2021

This is the second of two articles exploring ways we can tend to our close relationships, to ensure they remain strong and supportive. The first looked at the relationship with a partner, spouse, or significant friend. You can read it here

“Friendship is born at that moment when one person says to another,
‘What! You too? I thought I was the only one” — C.S. Lewis

How often do you see a post on social media from a friend or family member and think, ‘it’s been ages since I’ve seen/called/talked with them…’? Or going about your day, you see something that triggers a memory of a great time with someone important to you, and you can’t remember when you last spoke?

It’s so easy for life to get away from us and lose contact with our family and good friends. Finding time amidst all of our other obligations, the general busyness of life, and let’s not forget COVID ?, can push staying in touch to the bottom of our ‘to do’ list. But this inattention and neglect can distance us from the significant people in our lives. And it’s during times like these that we need them, and they need us more than ever.

Healthy relationships are good for our physical and mental health. They help us feel less stressed, reduce feelings of loneliness, distract us from pain, boost our immune system and make us feel happier and more resilient. They provide support when our various health issues make us feel exhausted and sad. And they bolster our mood when the long days of COVID make everything seem so grey.

That’s why we need to nurture these relationships with our family and close friends.

Here are some strategies you can use:

Make them a priority.
Value your relationships and work hard to keep them strong. Tend to them as you would any living thing – with regular care and attention. Build time into your day/week/month for them, and make this time sacrosanct. How often you connect depends on the depth of the relationship; however, the important thing is to make it happen. Don’t let them fall by the wayside as if they’re unimportant.

Accept (and embrace) our differences.
We’re all different (and isn’t that amazing!), but that means we can have differences of opinions, beliefs and lifestyles that may cause friction from time to time. Accept that this is the case. These differences can challenge us to consider other viewpoints and opinions. They can lead to exciting discussions and debates. But they can also lead to conflict and anger. If this happens, take some time to breathe, reflect on the situation, and return to it when you both feel calm. This may be challenging at times, but if it’s something you can move past, or if you can agree to disagree, do so. However, if the issue isn’t something you can ignore or live with, or your relationship has changed to the point that it makes you unhappy, it may be time to re-evaluate the relationship.

Trust your peeps.
Trusting someone takes bravery and can make us feel vulnerable. But it also builds intimacy with another person. When this trust is reciprocal, you can share your deepest thoughts and fears without fear of judgement. You can ask for help when you’re in pain or feeling overwhelmed. Apart from how great it feels to know that you have someone in your corner who you can trust with your deepest and darkest, it also feels great to be on the receiving end of that trust.

Show your appreciation.
People are adaptive and become used to things very quickly. So it’s easy to start taking a person for granted when you’re so used to them being there, listening to you, providing support. We get used to these things and don’t notice them as much because they’re always there. So take notice. Tell them how much you appreciate them. Give them your full attention when they’re speaking. Thank them when they do something for you. Send them a note or a small present out of the blue to let them know that you’re thinking of them.

Schedule, schedule, schedule!
We’re always so busy, so it’s a good idea when catching up with someone important that you make a date for the next catch-up before you part ways. That way, you can both put it in your diaries, and you have a firm commitment.

Create alerts.
Again, we’re busy bees ?, and things can slip by without us pausing to take note. That’s why I put birthdays, anniversaries and other important dates in my calendar and create alerts for them. It might be an alert to call them on the date or one that gives me time to find a card and gift and post it to them in time.

Establish traditions and routines.
We tend to have friends and family members that we associate with specific things or activities. For example, the friend you work out with, the sister you go to galleries with, the mate you go to the cricket with, the friend who’s always up for a spontaneous adventure. Taking advantage of these traditions means that you can catch up and enjoy shared interests. Win, win!

Share your interests.
We’re all looking for recommendations for books, movies, TV shows, podcasts etc (especially during lockdowns!). Share what you’re reading, watching or listening to, and your opinions. Create a discussion group – that sounds so formal ? – but it could occur during happy hour, video chat, social media or a walk around the park.

Call them.
Never underestimate the power of simply picking up the phone and having a chat, even a quick one.

Connect IRL.
Endless lockdowns and border closures have made connecting in real life so much sweeter. So if you can, and it’s safe to do so, catch up with your peeps in person for a walk, picnic, coffee, bike ride…whatever works for you.

Send photos.
With a smartphone, we can easily share our lives with important people. I’m not a selfie person, but I do take pics of things I see – a sunrise, a dog taking its owner for a walk, or a fantastic meal I can’t believe I cooked. The ordinary things that mean a lot to me and the people I share them with. And in return, I get pics from their days. It provides a glimpse into the everyday of lives, especially if we can’t be there in person.

Value the quick connections.
How often do you put off a call or catch up because you don’t think you have time? Not all of our connections need to be long or deep, and meaningful. A quick call to say hello, a silly selfie, a short text, or a quick email can help sustain relationships between the longer catch-ups.

Pay attention to how you feel.
Next time you’re with your close family or friends, pay attention to how you feel when you’re with them. How’s your mood compared to how it is when you haven’t seen them in a while? Even when they drive us crazy, we usually feel happy and more content when we spend time with these people.

Learn to forgive.
People have the power to hurt us. This can make us feel angry, sad and a whole host of other emotions. But we can control how we choose to deal with the hurt and our feelings. We can stew and brood – but this only makes us feel bad. Or we can forgive the person for the pain they caused. This doesn’t mean it’s forgotten or that the offense is suddenly excused or ok. It simply means that you’re taking control of the way you feel and healing the hurt. But it’s not always easy, so for some tips read, Eight keys to forgiveness from The Greater Good Science Center.

Apologise.
On the flip side of forgiveness is knowing when you’ve hurt others and when to apologise. This can be really tough because it’s hard to acknowledge that we’ve hurt someone or done something wrong. But it’s necessary to heal a relationship. It’s also crucial that we respect the other person’s feelings and that they may not be ready to forgive immediately. Be gentle and take time.

Allow for spontaneity.
Sometimes you just need to toss your schedules and chores out the window and be spontaneous!! Call the friend who’s always up for an adventure or the one in need of some good, old-fashioned fun, and throw caution to the wind. Go on a road trip, hit the shops, have a movie marathon. Whatever works for you and brings you together ?.

“There is nothing I would not do for those who are really my friends.
I have no notion of loving people by halves, it is not my nature.” — Jane Austen

Contact our free national Help Line

If you have questions about managing your pain, your musculoskeletal condition, treatment options, mental health issues, COVID-19, telehealth, or accessing services be sure to call our nurses. They’re available weekdays between 9am-5pm on 1800 263 265; email (helpline@msk.org.au) or via Messenger.

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specialists.jpg
15/Sep/2021

This is the third in our series exploring the different groups of health professionals and therapists who’ll help you live well with a musculoskeletal condition.

Managing a chronic musculoskeletal condition – or multiple conditions – can be complicated. To help you get the best health outcomes and maintain (or improve) your quality of life, you’ll probably see a variety of different health professionals and therapists.

Who you see and how often will depend on your condition/s, symptoms and how they affect your life.

What is a specialist in healthcare?

A specialist is exactly what it sounds like. A person – in this case, a medical doctor – who has undergone additional training to become a ‘specialist’ or an expert in a specific area of medicine.

Specialists work in clinics and in hospitals, both in the private and public health systems. To see a specialist, you’ll need a letter of referral from your general practitioner (GP) or another specialist doctor.

As far as musculoskeletal conditions go, the most common specialist that people will see is a rheumatologist. But many other specialists help people manage their condition. Let’s explore each of them.

Whether you see any of these specialists will depend on your condition, symptoms, and their effect on your overall health and wellbeing.

Seeing a specialist

To see a specialist, you’ll need a referral letter from your GP or another specialist doctor. This will include information about your symptoms and test results.

You can visit a specialist in a clinic or a hospital. Depending on various factors such as where you live, the number of specialists available, the urgency of your situation, and if there’s a waiting list, you may see a specialist quickly, or you may have to wait.

Talk with your GP about the costs involved when discussing your referral. Medicare will cover part of the fee to see a specialist but not all of it. Specialist fees can be high, and depending on your circumstances and eligibility, this may influence whether you see a specialist at a bulk-billing hospital or in a private clinic. If you have private health insurance, this may also cover some of your costs. However, it’s essential to ask about fees and your choices before seeing a specialist.

The Better Health Channel suggests asking the following.

Does the specialist:

  • work within the public or private health system?
  • bulk-bill via the Medical Benefits Scheme (MBS)?
  • require gap payments?
  • have a payment plan?
  • accept my private health cover?

Before your first appointment

When making your appointment, ask what information or test results you need to bring with you. The specialist may already have access to all or some of this information via your health records, but it’s a good idea to double-check.

You can also be proactive and create a file containing all of your results, records, medications and other treatments. Take it with you when you visit the specialist. That way there’ll be no potential delay in your assessment and treatment if your specialist can’t access some of your information. And make sure you include your referral letter.

Write down a list of questions about the things you want to know. This may be about diagnosis, treatment options, the benefits and risks of different treatments, costs, things you can do to manage better etc. Put them in order, with the most important questions at the top of the list. That way, if you run out of time, they’ll have been answered first.

Make sure you have an up-to-date list of your meds to take with you. This can be extremely helpful if your specialist hasn’t been able to access this information through online channels. You may want to use an app to keep track of your medicines so you always have this information with you. The MedicineWise app from the National Prescribing Service is free to download. You can create a list of your medicines by scanning their barcodes, set reminders for when to take medicines, store your test results and much more.

Consider taking a family member or friend with you. Healthcare appointments can be stressful, and having an extra set of eyes and ears can help you take it all in. They can also provide emotional support before, during and after your appointment.

During your appointment

The specialist will ask you about your symptoms and examine you.

Be open and honest when answering their questions. The specialist needs all the relevant information about you and your health to have an accurate idea of what’s happening and how best to treat you. They’ll need information about your medical history, other health conditions, treatments (both conventional and complementary) and lifestyle factors (e.g., how often you exercise, if you smoke, your diet etc.).

You may have one or more visits to your specialist before they have all the information they need. They may also send you for further tests. Once they have all the necessary information, they’ll explain your condition to you and what treatment they think you should have.

If you don’t understand what they’re suggesting, or you need more information, ask the specialist to explain further. Don’t be embarrassed to ask for this. Musculoskeletal conditions and treatments are complicated, so the more you understand, the better. And don’t be afraid to ask them to write things down for you.

After your appointment

Follow the treatment plan that you and your specialist have agreed upon. If they’ve requested you have further tests or book more appointments, make sure you do this as soon as possible.

If you’ve been prescribed medication, take it as instructed. If you can’t remember, or you’re not sure how to take it, talk with your pharmacist or call your specialist.

And for information and support between visits to your healthcare team, call our national Help Line on 1800 263 265 weekdays.

Contact our free national Help Line

If you have questions about managing your pain, your musculoskeletal condition, treatment options, mental health issues, COVID-19, telehealth, or accessing services be sure to call our nurses. They’re available weekdays between 9am-5pm on 1800 263 265; email (helpline@msk.org.au) or via Messenger.

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angry-woman.jpg
15/Sep/2021

Ever had a moment when you’re so enraged you feel like you’ll explode?

I was watching the news recently, and something made me furious. It flicked a switch in me, and I wanted to throw my glass at the wall. Such an OTT soap opera moment ?. Fortunately for my wall and my glass, I didn’t follow through. But it was a close call.

Many of us are angry at the moment. We may put on a happy face, but it’s simmering just below the surface. And it only takes a tiny thing to release it, leading us to do or say something impulsive we’ll regret later.

Where’s this anger coming from?

The last 18 months have been exhausting. We’ve been living with constant stress, anxiety and frustration. And there’s no end in sight yet. This has had a significant impact on our mental health. And one of the ways this can manifest is as anger.

What’s changed?

Last year we were all in it together – sort of.

But now, it seems like it’s every person for themselves. Us against them. State vs state. Community vs community. Politicians who can’t work together, constantly fighting ?.

We’re so over everything that we’re losing empathy and tolerance for others.

So it only takes something minor to make you lose it ? ? – someone cutting you off in traffic, unsolicited text messages from MPs, another appointment/event/freedom cancelled because we’re STILL in lockdown, or just stubbing your toe against the bedside table – ARGH ?!

And when it happens, we often take it out on those least deserving of it. Our loved ones who’re in the wrong place at the wrong time, or the retail/hospo worker just doing their job.

Apart from the negative impact our anger has on ourselves and those around us, being angry all the time, or not addressing this anger, affects our physical health. It can cause high blood pressure, headaches, anxiety, depression, insomnia and digestive issues. It also makes us unhappy, and no one wants that. So here are some tips to help you manage your anger before you have an OTT soap opera moment.

13 tips for managing anger

1.Breathe

Pause and take some calming breaths. If you can, close your eyes and focus on your breathing. Slowly take a deep breath. Fill your lungs to a capacity that’s comfortable for you. Then slowly release this breath. Don’t release it in a sudden exhale, but control it so it’s slow and smooth. Continue to take slow, even breaths…in and out. You’ll feel your muscles start to relax, and your mind will begin to calm.

2. Step away from the situation or put away your phone.

Our reactions when we’re angry can be out of character, and we can regret our actions once we’ve calmed down. So if you can, physically remove yourself from the space until you calm down. And put away your phone. Text messages or phone calls made in anger are the worst. And you can’t take them back.

3. Acknowledge how you’re feeling

Don’t suck it up. It’s okay to not feel okay. When you’ve had a chance to calm down, examine why the situation/person/event made you angry. Was it a rational response? Or was it an overreaction? Think about other ways you could handle the situation if something similar occurs.

4. Write it down

This can be really cathartic. Write down how you’re feeling in a journal or on a piece of paper. This lets you get it out and then reflect on your feelings, which can help you understand why you react in a particular way. It can also help you get a better handle on your emotions.

5. Then let it go

In the end, holding on to anger only makes us and those close to us unhappy.

6. Be kind to yourself

Use simple strategies to reduce stress; try exercising, talking with a friend, meditating, making a cup of tea, doing something creative. Whatever relaxes you, do it! It’ll help you put your stress and anger behind you and make you feel more energised and positive.

7. Be kind to others

Nothing makes you feel better than being kind to others…letting someone in front of you at the checkout, holding the elevator, complementing a colleague on their work, thanking the delivery person, hugging your kids. These small acts of kindness are easy to do and go a long way to making us all feel better and less angry.

8. Create a daily routine to increase feelings of control

A regular daily routine gives you control in a time when so much is out of our control. Separate work and non-work time. Prioritise your connections with others, healthy eating, sleep and exercise. Have a work/school week routine and a weekend routine.

9. Focus on what you can do, not what you can’t

At the moment, many of us can’t visit our friends and family. We can’t travel or have a meal in a restaurant. We can’t celebrate together. And that all sucks. But we can call our friends and family. We can travel through books, virtual tours, revisit past travels and plan future trips. We can send cards, presents and tokens to celebrate milestones and occasions. It’s not the same, but it is still doing something. So focus on the things you can do.

10. Agree to disagree

Don’t let your differences affect your relationships with others. We’re all feeling heightened emotions, and we’ve all got our opinions. A lot has been thrown at us in the last 18 months! But if there’s tension or anger when discussing certain viewpoints, agree to disagree, and move on.

11. Monitor your social media use and limit your news intake

Too much media can increase feelings of frustration and anger. It certainly did for me! So I now skim through the paper once a day, and instead of watching the evening news, I’m watching old episodes of Friends (it’s on all the time ?). With this routine, I’m in control. I’m aware of what’s happening in the world, I’m avoiding the most sensational stuff, and I’m enjoying spending quality time with old friends ?. I’m also limiting my time on socials and spending the time doing other things that are more enjoyable and relaxing.

12. Be careful with drugs and alcohol

While it might seem like an easy way to unwind when you’re stressed or angry, drugs and alcohol won’t solve the issues that make you angry. So just be careful here. It’s an easy habit to fall into and a hard habit to break.

13. Seek help from a professional if your anger becomes overwhelming or feels unmanageable

Talk to your doctor about how you’re feeling and ask them for help.

Anger is an important emotion, but if you start to feel it more and more, it can be detrimental to your health and wellbeing. So next time you start to get worked up, try these strategies to get you through. It’ll take practice, but it’s worth the effort.

For every minute you remain angry, you give up sixty seconds of peace of mind. Ralph Waldo Emerson

Contact our free national Help Line

If you have questions about managing your pain, your musculoskeletal condition, treatment options, mental health issues, COVID-19, telehealth, or accessing services be sure to call our nurses. They’re available weekdays between 9am-5pm on 1800 263 265; email (helpline@msk.org.au) or via Messenger.

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